Alex: The Life of a Child by Frank Deford

Alex: The Life of a Child

Title of books: Alex: The Life of a Child
File name: alex-the-life-of-a-child.pdf
Author: Frank Deford
Publisher: Open Road Media
Release date: February 24, 2015

Frank Deford with Alex: The Life of a Child

A fathers moving memoir of cystic fibrosis captures a brave childs legacy as well as the continuing fight against the genetic disease (TheNew York Times).

In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span of CF patients tremendously over the last four decades, the illness remains fatal.

Given only two years to live by her doctors, the imaginative, excitable, and curious little girl battled through painful and frustrating physical-therapy sessions twice daily, as well as regular hospitalizations, bringing joy to the lives of everyone she touched. Despite her setbacks, brave Alex was determined to live life like a typical girlgoing to school, playing with her friends, traveling with her family. Ultimately, however, she succumbed to the disease in 1980 at the age of eight.

Award-winning author Frank Deford, celebrated primarily as a sportswriter, was also a budding novelist and biographer at the time of his daughters birth. Deford kept a journal of Alexs courageous stand against the disease, documenting his familys struggle to cope with and celebrate the daily fight she faced. This book is the result of that journal.

Alex relives the events of those eight years: moments as heartwarming as when Alex recorded herself saying I love you so her brother could listen to her whenever he wanted, and as heartrending as the young girls tragic, dawning realization of her own very tenuous mortality, and her parents difficulty in trying to explain why.

Though Alex is a sad story, it is also one of hope; her greatest wish was that someday a cure would be found. Deford has written a phenomenal memoir about an extraordinary little girl.